Muscular Dystrophy services in the North West

This morning I attended the Muscular Dystrophy All Party Group meeting. We have been urging the North West Specialised Commissioning Group to carry out a review of services to improve service provision across the North West following the publishing of the Walton Report into access to Specialist Neuromuscular Care. Last year I tabled a parliamentary motion - Early Day Motion 1704 - welcoming the launch of the North West Muscle Group, which is led by local families and people affected by muscular dystrophy and related neuromuscular conditions who campaign to improve access to essential specialist care and support. And few weeks ago I had been invited to speak at their meeting in Manchester and to hear from MD patients and carers about the problems and difficulties in accessing services.

At the All Party meeting I was delighted that Jon Develing, the Chief Officer of the North West SCG confirmed this morning that he would be recommending a review, and that if this was approved, he would expect it to be carried out in the first 6 months of the new financial year. This is an important step forward in ensuring that all people in the North West with MD will have access to the right services

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